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Government Funding Lapse
Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted. The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov. Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.
Statistics for cancers in children, adolescents, and young adults
National Childhood Cancer Registry
The National Childhood Cancer Registry (NCCR) is a component of NCI's Childhood Cancer Data Initiative (CCDI) Data Ecosystem. The goal of CCDI is to build a community of pediatric cancer researchers, advocates, families, hospitals, and networks committed to sharing clinical care, registry, and research data. By gathering and integrating data from every child, adolescent, and young adult diagnosed with childhood cancer, CCDI aims to improve our understanding of cancer biology, prevention measures, treatment, quality of life, and survivorship. CCDI will help accelerate research progress for children, adolescents, and young adults (AYAs) with childhood cancer and their families. Sign-up for email updates.
The NCCR is a rapidly growing public health data resource. Its primary goal is to provide a platform to better understand the causes, outcomes, effective treatments, and late effects of cancer among children, adolescents, and young adults in the U.S. The NCCR contributes to the CCDI data ecosystem by serving as a linked infrastructure of central cancer registry data that integrates other childhood cancer data—from hospitals, research centers, heath care administration, and other sources—to enhance access to and utilization of childhood cancer and survivorship data. The NCCR uses the Virtual Pooled Registry Cancer Linkage System to generate an accurate count of childhood cancer cases by combining information that appears in more than one registry and reporting on every cancer case regardless of where someone receives care.
Map of the 29 NCCR Participating Registries
The NCCR will be updated annually with newly diagnosed cases. NCCR plans to continuously expand its capacity through linkages to enhance its database with genomic and tumor characteristics, longitudinal treatment information, indicators of cancer recurrence, and adverse health conditions.
The NCCR aims to serve the cancer surveillance and registry community, clinicians, researchers, policy makers, educators, and patients and their families by:
providing accurate counts and trends of childhood cancer incidence and survival,
supporting research on childhood cancer through potential sampling and data provision, and
enriching the value of rare and limited childhood cancer data through linkages and clinical applications.
About the Current NCCR Data Release
Data from up to 29 of the NCCR registries
Represents 76% of the U.S. population aged 0-39
Includes 1,760,951 reported cases under age 40 (2001-2022)
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